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Changing Our Story, Changing Our Lives. Video of Launch and Panelist Bios. Real Wealth of Nations Chapter Summaries.
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Helsinki København Oslo Oulu Stockholm Århus. Nordic raredis meeting May 28 2013, Copenhagen. The Nordic database for rare diseases has been developed in Denmark in accordance to the recommendation in the Danish report of rare diseases from 2001 and recommendations from a Nordic working group on cranio-facial diseases. Extended discharge information added to patient forms, and also search forms updated with search for discharge reason.
Registration of a rare disease patient. Access to treatment for rare diseases in Bulgaria. This site complies with the HONcode standard for trustworthy health. Save the date for the Sixth National Conference for rare diseases and orphan drugs. Submission of proposals and request to the Commission on Rare Diseases.
List will also search for matching abbreviations and alternate names. List will also search for matching abbreviations and alternate names. Only 343 of the 1,160 conditions in the search database have communities activated. We are processing them alphabetically. If you wish for one to be fast-tracked, please use the contact form. If there is a rare disease we do not have in the search database, then please let us know about that, as well.
You need to upgrade your Flash Player. Keep up to date with our work, follow us on Twitter. Rare Disease page now on. The Northern Ireland Rare Disease Partnership. Annual reports and AGM papers. Living with a Rare Disease. Stories from Patients and Families.